Community Research Hub
Our new Community Research Hub aims to reflect voices of the kidney community.
Kidney Health Australia strives to bring the kidney community's voice to research in a more coordinated way to translate community needs into research priorities.
Kidney Health Australia has created a Community Research Hub to reflect voices of a kidney community. We aim to publish research factsheets, establish kidney research register, provide training to people living with kidney disease and their carers, and create database that can match kidney community needs to the research.
If you want to participate in kidney research, please scroll down to the listings at the bottom of the page.
Kidney Research OpportunitiesIf you are interested in finding out more about what clinical trials are and how they are conducted click the button below
About clinical trialsPatient Research Opportunities
PaCE CKD: International patient-centric CKD research: treatment preferences, QoL & financial burden
PaCE CKD is a multi-country market research study conducted in the UK, Egypt, Italy, Mexico, Taiwan, Germany, Australia and the US. The main objective of the study is to determine patient and carer preferences for CKD treatments and to understand burden of disease in terms of quality of life, financial burden and work productivity. The study has been reviewed by an international Institutional Review Board (Pearl IRB) and has been granted an exemption for a full review due to its low/negligible risk nature. For Australia we are looking to recruit 100 CKD patients in dialysis and 50 informal carers caring for CKD patients in dialysis. The method of data collection is a 30-minute online survey. In appreciation for participants’ time and participation, we will provide a reimbursement of AUD 35 with a bank transfer. The survey results will be published – sharing patient preferences and the burden of CKD. Ready to participate? If you are a patient on dialysis, please use this link: https://survey.confirmit.com.au/wix/p936996995871.aspx?source=KHA If you are caring for a patient on dialysis, please use this link: https://survey.confirmit.com.au/wix/p825409087177.aspx?source=KHA Want to learn more? Contact the researcher at [email protected].
Learn MoreKidney Cancer patient experience, treatment preference research
We are conducting a vital research study to understand patient experiences, preference of treatment and needs in living with kidney cancer to potentially transforming kidney cancer care, ensuring future generations of kidney patients benefit from the advancements made possible by this study.
Learn More